Follow-up clinic bone sarcomas
Active, not recruiting
Who can enter
Children and adults who completed therapy for a pediatric osteosarcoma or Ewing sarcoma
All ages
Goal
Goal
The goal of this study is to examen the long term problems that occur after surgery or radiation therapy in children and adults that were treated for a pediatric bone sarcoma. Consequently, we want to determine how we can best tackle and follow up these problems.
Background
Background
Even after completion of treatment for a bone sarcoma, you still go to the hospital for regular follow up. Besides checks at the pediatric oncologist’s, follow up by other care professionals (like the orthopaedic surgeon or physical therapist) is also often required. Therefore a joint (‘multidisciplinary’) clinic was constructed including a pediatric oncologist, orthopaedic surgeon, rehabilitation specialist, physical therapist and psychologist.
When you come to this clinic, you can choose to participate in research. In this study, we evaluate the problems that occur after surgery or radiation therapy. Surgery or radiation therapy for a bone sarcoma can have impact on many aspects in your life. Even after you have finished therapy. For example in exercising, sports, school, hanging out with friends, and how comfortable you feel in your own skin. However, we do not know very well which problems exactly occur and how often. That is why we do this study.
Last reviewed
Last reviewed
February 2, 2026
Study details
- Study details
Official title
Functional outcome, adverse events, psychosocial functioning and health-related quality of life after local therapy for bone sarcoma in children; a multidisciplinary and standardized approach feeding into optimal follow-up care for the future.Cancer type
Osteosarcoma
Ewing sarcoma
Phase
4Number of patients
We expect to see over 200 patients at the clinic in the next 2 yearsStart date
01-11-2021Status
Closed for inclusionLocal principal investigator
Prof. dr. J.H.M. MerksSponsor
Princess Máxima Center for pediatric oncologyApproval
This study has been reviewed and approved by the internal scientific committee (Clinical Research Committee) of the Princess Máxima Center. An accredited medical research ethics committee waived the need for official approval according to the Medical Research Involving Human Subjects Act (WMO), and is therefore not further involved in the review of the research. This is only done for studies with low risk or low patient burden. More information can be found at: CCMO.
The above information is intended as a brief summary only and may not reflect the most up-to-date information. For full details and the current status of a protocol, physicians can contact the Princess Máxima Center directly.